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Gifts and Gear… Happy Holidays!

The wishlist I wish I had when I first got sick. Get tools that help you keep living your life. Cooling vests & scarves, salt pigs, charcoal bags, Vanicream, Vogmasks, portable thermostats, mobility items! No sponsored products (nothing here is of course). Many of these are just generally thoughtful good gift ideas for a chronically ill person.


Infographic! Making POTS Relevant

Please share it! It’s about time to know about POTS. POTS is just as common, if not much more common than many other well-known debilitating conditions including: Lupus, Rheumatoid Arthritis, Crohn’s Disease, Ulcerative Colitis, Type I Diabetes, Chronic Fatigue Syndrome (ME/CFS), Parkinson’s Disease, Sickle Cell Anemia, Cystic Fibrosis, Amyotrophic Lateral Sclerosis (ALS)/Lou Gehrig’s Disease, and many others…

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Top 5 List: What to Say to a Chronically Ill Person

There is a huge difference between empathy and sympathy. Which are you getting? When you’re sick, a lot of people are trying desperately to say the right thing, but just fumble. Friends and family can mean well, but can say things that sting like daggers. Being chronically ill breaks our culture’s espoused strong and independent ideal, which can make it even more uncomfortable for others to acknowledge…